Webinar  | “Oral Health for Children with  Special Health Care Needs”

The following webinar is designed for caretakers of children with special health care needs. It would provide a general overview of the importance of daily mouth care and how you as caregivers can help. When your child has good oral health, it will improve the quality of both of your lives. Children with special health care needs are at great risk for dental diseases, and many times they do not know how or are unable to care for their teeth. Caregivers can play a very important role in helping a person have good health, comfort, and hygiene.

Date: Thursday, June 13, 2019
Time: 12 pm to 1 pm
Speaker: Maria, Czarniecki, DMD

Dr. Czarniecki was born and raised on Long Island, received her B.S. in Biology with a Concentration in Genetics and Development from Cornell University and earned her D.M.D. at Temple University School of Dentistry. She has worked in private practice for over 20 years and also has experience working with the developmentally disabled population. Dr. Czarniecki has an older brother who is special needs, so life experience and the need for more and better health care for this particular population is what drew her to focus in this area. She has worked with developmentally disabled children through NJ Dental Lifeline and through Rutgers University School of Dentistry at the Matheny Dental clinic. Currently, she works at Gentle Care Dentistry in Chester, NJ.

This webinar is possible through the collaborative effort of Arc Of NJ, NJ Council on Developmental Disabilities and SPAN Advocacy Network. 

For registration click here: https://zoom.us/webinar/register/WN_9hqI2J8eSq67ETfeWaUQsQ

SPAN Awarded Two Parent Center Technical Assistance Center Cooperative Agreements

The SPAN Parent Advocacy Network (SPAN) is pleased to announce their successful renewal of two cooperative agreements from the US Department of Education’s Office of Special Education Programs (OSEP): (1) The Center for Parent Information and Resources (CPIR) and (2) Navigating Excellence — Parent Center Assistance and Collaboration Team (NE-PACT).

Both grants support the Parent Center Network — Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) — throughout the country.  These dedicated Parent Centers provide information, training, and support for families of children with disabilities as they navigate the early intervention and education systems, and as they grow and age out of public education into employment, independent living, and higher education opportunities.

The CPIR has been under the SPAN roof since 2013.  It supports the almost 100 Parent Centers throughout the US and its territories with high quality resources and professional development for Parent Center staff.  Its website (parentcenterhub.org) houses around 1,200 resources developed by a cooperative group of advisors and partners with expertise in disability advocacy and in the laws and practices related to early intervention, education, and transition to adulthood.

The CPIR is coordinated by a talented team with decades of personal and professional experience who bring a wide range of abilities to their roles as leaders and advisors to the Parent Center Network.  Led by SPAN Co-Director Debra Jennings, the CPIR represents a collaboration between SPAN, Parent to Parent of Georgia (one of the four Regional Parent TA Centers), and a network of other Parent TA Centers and partners.

NE-PACT has been housed at SPAN since 2003.  In the past, it served as one of six Regional Parent Technical Assistance Centers (RPTACs) providing support to Parent Centers throughout the US and its territories.  As the former Region 1 PTAC, NE-PACT covered the northeastern states of CT, MA, ME, NH, NJ, NY, PA, RI, and VT.  With this new award, it is one of four RPTACs and will serve 26 Parent Centers in the nine former states plus DC, DE, MD, and the US territories of Puerto Rico and the US Virgin Islands.

Co-led by SPAN Co-Director Diana Autin and Director of Family and Professional Development Carolyn Hayer, NE-PACT represents a collaboration between all of the Parent Centers in Region A and funded partners EPICS (the former Native American TA Center) and PAVE (the former Military Parent TA Center) as well as the Long Island Advocacy Center, Parent Network of Western New York, and four national self-advocacy organizations: the Autistic Self-Advocacy Network, Eye to Eye, Kids As Self-Advocates, and Youth MOVE.

SPAN is pleased to be able to continue providing high quality, relevant, and useful support to Parent Centers for another five years and facilitating a “Community of Practice” among them.  For more information about the CPIR, NE-PACT, and SPAN’s other national and regional projects, go to spanadvdivi.wpengine.com/programs.

Federal Judge Maintains Protections for DACA

From: NJ Politico Pro

The Murphy administration hailed a federal judge’s decision today to deny a motion by Texas and seven other states to end protections for recipients of the Deferred Action for Childhood Arrivals program.

New Jersey had intervened as a defendant in the case.

“Today is a win for thousands of New Jerseyans who proudly call our state home — and hundreds of thousands of DREAMers nationwide who have known no other nation than ours,” Gov. Phil Murphy and state Attorney General Gurbir Grewal said in a joint statement. “We will continue to ensure that New Jersey remains a welcoming place for all who wish to be part of America’s story. It is now time for Congress to finally enact comprehensive immigration reform that includes a path to full citizenship for our DREAMers.”

The plaintiffs in the case had sought preliminary injunction to end DACA after President Donald Trump’s administration was enjoined from ending the program. The plaintiffs had wanted an injunction to bar the federal government from issuing or renewing DACA permits.

But Judge Andrew Hanen of the U.S. District Court for the Southern District of Texas ruled Texas failed to show irreparable harm, which it needed to do to be granted an injunction, according to New Jersey’s Attorney General’s Office.

Grewal, in a second statement, also said today’s ruling to keep DACA in place “heads off what would have been a catastrophic outcome” by protecting Dreamers from deportation.

About 53,000 DACA-eligible residents live in New Jersey, of which 17,400 hold current DACA permits, the state estimates.

ESSA, Chronic Absenteeism, and Students with Disabilities

DC and 36 states, including New Jersey, will use chronic absenteeism as one of or the only metric for the Every Student Succeeds Act’s new indicator of school quality or student success. Below are reports with new information on Chronic Absenteeism and students with disabilities written by our partners at the Advocacy Institute and the Center for Law and Education for the National Center on Educational Outcomes. It provides important information on both the promise and potential challenges this new accountability provision holds for students with disabilities.

SPAN Awarded Funding to Continue as NJ’s Family to Family Health Information Center

We are pleased to announce that SPAN received word today that we have been refunded to continue to serve as NJ’s Family to Family Health Information Center! Excited to be able to inform and empower families of children and youth with special healthcare needs as leaders in their families, communities, our state, and nation! Check out our F2F resources at http://www.spanadvocacy.org/content/family-family-health-information-center-family-voices-nj and our Health Advocacy Toolkit at www.spanadvocacy.org/content/health-advocacy-toolkit.