Family Engagement and Leadership in Systems of Care
BUILDING THE CAPACITY OF FAMILY-LED ORGANIZATIONS TO REACH AND SERVE DIVERSE FAMILIES, AND OF MATERNAL AND CHILD HEALTH PROGRAMS TO PARTNER WITH DIVERSE FAMILIES AND YOUTH AT ALL LEVELS.
What We Do
Funded by the US Department of Health and Human Services Maternal and Child Health Bureau (MCHB), the Family Engagement and Leadership in Systems of Care is a national center funded to provide technical assistance to support family-professional partnerships aimed at improving outcomes for children and youth with special healthcare needs (CYSHCN).
SPAN’s focus is working with the network of Family to Family Health Information Centers and Family Voices Affiliate Organizations, as well as Maternal and Child Health Programs across the country to enhance their capacity to engage and support diverse family and youth partnerships at all levels on behalf of CYSHCN. We use materials from Serving on Groups and Leading by Convening: The Partnership Way as well as resources to strengthen the nonprofit and service delivery capacity of family organizations in this work.
(Other partners include the Center for Parent Information and Resources, National Federation of Families, Parent to Parent USA, Youth As Self-Advocates, Youth MOVE, and the National Institute for Children’s Health Quality, among others. A National Project Advisory Committee composed of CYSHCN stakeholders from across the country advises the work.
Resources & Materials
Leadership is a Journey: A Series for Youth Self-Advocates | Youth leadership webinar series that supports the identification of leadership as a journey and support understanding and learning in key leadership development areas
Leadership in Family-Professional Partnerships | Link to the NCFPP website
Family-Centered Care Assessment | Nationally validated tool to assess family-centered care
Pre-Post Results | Serving on Groups Three Year Pre-Post Survey Report
Pre-Post Results | Leading by Convening Three Year Pre-Post Survey Report
Family Engagement and Leadership in Systems of Care (FELSC) is funded by the US Department of Health and Human Services Health Resources Service Administration Maternal and Child Health Bureau. National Family Voices is the FELSC grantee and SPAN is a partner via subcontract.