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National Healthcare Transition Resource Center

The transition period to adulthood is tough, especially for youth with disabilities. A new resource center is being made on healthcare transition and it will be directed by youth leaders with intellectual and developmental disabilities (ID/DD). 

To address these barriers, the National Healthcare Transition Resource Center has been created.This center will help youth with disabilities in becoming as independent as they choose when taking care or making decisions about their health. 

Healthcare transition is “the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult health care systems.” Watch this video from Got Transition to learn more about healthcare transition

young woman sitting in chair

What is the National Healthcare Transition Resource Center?

The National Healthcare Transition Resource Center (NHCTRC) for youth with intellectual and developmental disabilities (ID/DD) provides healthcare transition training and resources to diverse youth and young adults with ID/DD, ages 12-26, their families, and the professionals who serve them. This center will be a person-centered, culturally responsive resource center to empower youth with intellectual and developmental disabilities (ID/DD) in directing their own healthcare. The work of the Center will be guided by the Youth Steering Committee.

Video: Learn more about the National Healthcare Transition Resource Center

What is the Youth Steering Committee?

This project will be led by a Youth Steering Committee. This Committee will guide the Center in understanding what youth need to transition in their healthcare. This group of 8-10 young adults with intellectual and developmental disabilities will ensure that the project is youth driven. It will provide feedback and support to the center and its staff in developing resources (such as the website; app; and tools for youth, families, and professionals). 

The perks of joining the Youth Steering Committee members will receive: Meet new people and network with experts in the field 

    • Find national mentors
    • Develop important life and job skills 
    • Have the opportunity to make a difference in the lives of youth with disabilities across the country 
    • Every committee member will receive $600 annually for their work, time, and expertise. Additional money or gift cards will be given for any for extra time or work on a project(s) or reviews (accommodations can be made on payment methods)

Youth Steering Committee members are expected to:

    • Meet virtually 1-2 hours each month and spend time each month supporting the Center 
    • Create an action plan for the committee
    • Guide the Center in its development of activities and tools
    • Discuss current healthcare issues and barriers facing youth
    • Assist in designing an app that helps people with disabilities manage their health
    • Serve a 2 year term (can reapply to serve another term)

Become a Member of the Youth Steering Committee

The Center is looking for and selecting diverse, youth leaders with intellectual and developmental disabilities to be members of the committee. Members of this committee will have the opportunity to help create a national Center that will support youth with disabilities transitioning to adult healthcare. 

Who Should Apply?

We are looking for diverse individuals with various disabilities and accommodation needs. If you are:

  • 16-26 years old
  • Have intellectual or developmental disabilities
  • Want to make a difference

Then you maybe the perfect new member of the Youth Steering Committee

Portrait of a young woman with special needs

Apply Today 

Applications are due by February 21, 2022

Application Process 

The application has two parts. You must complete both steps to apply for the committee. Don’t worry if you are not selected this year. You will have another chance to apply 

Step 1 (due February 21, 2022)Complete the survey by clicking here 

Step 2 (due March 7, 2022)When you have finished your, you will get an email from Rachel Shandler. If you meet the criteria for our committee members (age and disability) you will find an attached document with questions that will help us learn more about you. You can answer the questions in writing, a video, or through an interview on Zoom. 

Step 3- We will then review the questionnaire. We will be using a rubric to evaluate your answers and decide if you are a committee member. The rubric contains characteristics of a committee member. 

Applicants will be informed by March 14, 2022 about whether they have been selected to be members of the committee. 

For help to fill this survey out or for more information contact: 

Rachel Shandler 

NHCTRC Youth Engagement and Empowerment Coordinator 

Email: rshandler@spanadvocacy.org or call  215-550-1340

More about National Healthcare Transition Resource Center

The U.S. Department of Health and Human Services, Administration for Community Living has funded a collaborative partnership of Family Voices with the National Alliance to Advance Adolescent Health/Got Transition, SPAN Parent Advocacy Network in New Jersey, the University of Missouri-Kansas City and the Waisman Center at the University of Wisconsin-Madison to development a National Healthcare Transition Resource Center for youth with intellectual and developmental disabilities (ID/DD).

 

This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,425,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.