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National Healthcare Transition Resource Center for Youth with ID/DD

The transition from childhood to adulthood is tough, especially for youth with disabilities. A new resource center is being made for healthcare transition. 

The creation of the National Healthcare Transition Resource Center will:

  • Be directed by youth leaders with intellectual and developmental disabilities (ID/DD), and
  • Help youth with disabilities to direct their own healthcare. 

Healthcare transition is “the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult health care systems.” Watch this video from Got Transition to learn more about healthcare transition

young woman sitting in chair

What is the National Healthcare Transition Resource Center?

The National Healthcare Transition Resource Center (NHCTRC) for youth with intellectual and developmental disabilities (ID/DD) will:

  • Provide healthcare transition training and resources to youth and young adults with ID/DD, ages 12-26, their families, and the professionals who serve them.
  • Be a person-centered, culturally responsive resource center to empower youth with intellectual and developmental disabilities (ID/DD) in directing their own healthcare

More about National Healthcare Transition Resource Center

The U.S. Department of Health and Human Services, Administration for Community Living has funded a collaborative partnership of Family Voices with the National Alliance to Advance Adolescent Health/Got Transition, SPAN Parent Advocacy Network in New Jersey, the University of Missouri-Kansas City and the Waisman Center at the University of Wisconsin-Madison to development a National Healthcare Transition Resource Center for youth with intellectual and developmental disabilities (ID/DD).

Video: Learn more about the National Healthcare Transition Resource Center for Youth with Intellectual and Developmental Disabilities

What is the Youth Steering Committee?

The Youth Steering Committee will tell the Center what youth need to transition their healthcare. This group of 8-10 young adults with intellectual and developmental disabilities will make sure the project is youth driven. The Youth Steering Committee will learn new skills, share ideas, and make decisions about a website, app, and tools for youth, families, and professionals.

The Perks of Joining

Youth Steering Committee members will:

  • Meet new people and work with experts in the field find mentors from all over the country
  • Gain important life and job skills
  • Make a difference in the lives of youth with disabilities across the country

 

Every committee member will receive $600 annually for their work, time, and expertise. Additional stipends will be available for any for extra work on projects or reviews. Stipends can be paid in the way that works best for you.

Youth Steering Committee members will:

  • Meet virtually for 1-2 hours each month and spend time each month sharing ideas for the Center
  • Guide the Center in creating activities and tools
  • Learn about current healthcare issues
  • Help to design an app to help youth with disabilities manage their healthcare
  • Serve a 2-year term (may reapply to serve another term)

Become a Member of the Youth Steering Committee

The Center is looking for diverse youth leaders with intellectual and developmental disabilities to be members of the committee. Members of this committee will help youth with disabilities across the country transitioning to adult healthcare.

Who Should Apply?

We are looking for individuals with all kinds of disabilities and accommodation needs. The Youth Steering Committee might be perfect for you if:

  • You are 16-26 years old
  • You have an intellectual or developmental disability
  • You want to make a difference in healthcare

 

Portrait of a young woman with special needs

 How to Apply

The application has two parts – a survey and an interview. You must complete both parts to apply for the committee. Diverse youth are encouraged to apply.

Step 1  – Complete your survey online here    –   Spanish survey

You can also complete the survey by contacting Rachel Shandler if you prefer to complete the survey another way, like by Zoom.

Rachel Shandler, Youth Engagement and Empowerment Coordinator

Email: rshandler@spanadvocacy.org

Phone: 215-550-1340

Step 2 – Complete Application Questions

When you finish the survey, Rachel Shandler will contact you with more questions that will help us learn about you. You can answer these questions by writing or typing your answers, recording a video, through an interview on Zoom, or another way that meets your needs.

Step 3 – Application review

Members of the project leadership team will review applications and select Youth Steering Committee members.

Step 4 – Notification

If you have questions about applying for the Youth Steering Committee or need help to complete the application, please contact:

Rachel Shandler, Youth Engagement and Empowerment Coordinator

Email: rshandler@spanadvocacy.org

Phone: 215-550-1340

This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,425,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.