SPAN is pleased to announce that one of our Transition Coordinators, Erin Seigh, has been selected to be a parent advisor for Got Transition’s newly-created National Family Health Care Transition Advisory Group.
The organization, in collaboration with Family Voices, selected 11 parents of transition-aged youth and young adults, ages 13-25, to provide their family perspectives on health care transition. Erin joins a diverse group of people from several national and state organizations, including Autism Society of America, Family Voices, Genetic Alliance, Institute for Patient and Family Centered Care, Jack and Jill of America, National Down Syndrome Congress, National Family Association for DeafBlind, and Sickle Cell Disease Association of America, ASK Family Services, and Family Advocacy and Community Training.
The National Family Health Care Transition Advisory Group will complement the work of Got Transition’s National Youth and Young Adult Transition Advisory Group. It will provide a range of family perspectives to guide Got Transition’s plans moving forward. The Advisory Group members will develop a new health care transition toolkit for parents and caregivers, provide pivotal feedback on website information and resources for families, and help bolster Got Transition’s partnerships with their organizational affiliates. Through these activities, the Advisory Group will play a critical role in expanding outreach and engagement of parents in health care transition.