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Speak Up! Take Action! Create Change! Conference

Speak Up! Take Action! Create Change! logoThanks to everyone who attended the SPAN "Speak Up! Take Action! Create Change!" Parent Leadership and Advocacy Conference on May 6, 2017 at the National Conference Center in East Windsor.  “When a flower doesn’t bloom, you fix the environment in which it grows, not the flower.”*  The conference agenda focused on working together to "fix the environment" and  “Creating Change” by creating strong, informed parents, strong families, excellent schools, quality health, mental health, and human services, and stronger communities.  For the Conference Agenda, go to:  

SPAN Connecting to International Disability Advocacy Efforts

In October 2016, The Statewide Parent Advocacy Network (SPAN) hosted Jessica Lim, a Fellow from Brunei. Jessica works in Brunei, South Asia, at Learning Ladders, a non-profit organization that provides services to children with autism spectrum disorders. During her stay in the U.S., Jessica was deeply involved for three weeks in SPAN activities. She learned how SPAN is committed to empowering families as advocates and partners in improving education, health, and mental health outcomes for infants, toddlers, children and youth.

When Jessica visited the US, she was part of the YSEALI

New Resource on Health Coverage Options now available

This guide was created for parents and professionals who need to understand health coverage options for the treatment of autism and other developmental disabilities.  It describes different types of health coverage plans, what federal and state laws apply to these types of plans, how those laws affect what benefits are covered, and it provides tips on accessing benefits.

Ensuring that children receive the full range of intervention available through their health coverage is a collaborative effort between parents and professionals.

New USDE Rules on Schools Billing Medicaid for IEP Services

What's Happened?  New regulations from the US Department of Education now make it easier for schools to bill Medicaid for related services provided at school as part of a child's Individualized Educational Plan (IEP).  These regulations now only require parental consent the first time that the school plans to bill Medicaid, and at any time that there are changes in the amount or type of related services that could impact Medicaid billing.  They also require that the school provide notice at least annually to the parent that they have provided this consent.  You can find the new regulations, a

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