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Dear SPAN Website Users: We try to make our website as accessible as possible for parents and others with special accessibility needs.  Please let us know if you have any difficulty accessing our website information and resources and we will do our best to accommodate you!  Reach out to us at apelham@spannj.org  Thanks, and happy browsing through our website!

News

Focus groups on care coordination for families and youth with special healthcare needs!

The NJ Department of Health, SPAN, and the American Academy of Pediatrics-NJ Chapter, are partnering to facilitate a series of focus groups of parents of and youth with special healthcare needs around care coordination!  Be a part of the solution!

PLAN & PREPARE - Register Ready

New Jersey Special Needs Registry for Disasters

"Register Ready" is a free, voluntary and confidential web-based program designed to identify the needs of people who may find it difficult to get to safety in the event of an emergency.

People with access and functional needs (or caregivers on their behalf) are encouraged to register electronically, if possible, by accessing www.registerready.nj.gov. Alternatively, they can call New Jersey’s toll-free 2-1-1 telephone service.

How has the Affordable Care Act impacted children with special healthcare needs?

Find out how the Affordable Care Act has impacted children and youth with special healthcare needs and their families in this article published in the August 2016 issue of Exceptional Parent magazine.  To read the article and access its resources, go to http://www.spanadvocacy.org/content/aca-impact-children-special-healthca....

Jeanne McMahon Joins SPAN as Director of Health & Family Support Programs!

Jeanne McMahon has joined SPAN as Director of Health and Family Support programs, including maternal and child health and children with special healthcare needs activities. She oversees SPAN's Medical Home Initiatives and improving pregnancy/reducing birth defects and developmental disabilities activities.  Learn more about Jeanne at http://www.spanadvocacy.org/content/jeanne-mcmahon-joins-span-director-h...

ADHD & Section 504 Guidance from US DOE Office for Civil Rights

The U.S. Department of Education’s Office for Civil Rights (OCR) today issued guidance clarifying the obligation of schools to provide students with attention-deficit/hyperactivity disorder (ADHD) with equal educational opportunity under Section 504 of the Rehabilitation Act of 1973.  The guidance can be found here

Over the last five years, OCR has received more than 16,000 complaints that allege discrimination on the basis of disability in elementary and secondary education programs, and more than 10 percent involve allegations of discrimination against students with ADHD.

Accessibility of our website

Dear SPAN Website users:

We try to make our website as accessible as possible for parents and others with special accessibility needs.  Please let us know if you have any difficulty accessing our website information and resources and we will do our best to accommodate you!  Reach out to us at apelham@spannj.org.  Thanks, and happy browsing through our website!

17th Anniversary of the Olmstead Decision for Community Living for Individuals with Disabilities

Source: Administration for Community Living. June 2016
 
Seventeen years ago, on June 22, 1999, the Supreme Court decided in Olmstead v. L.C. (Olmstead) that under the Americans with Disabilities Act, people with disabilities cannot be unnecessarily segregated and must receive services in the most integrated setting possible.
 
The case was brought by two Georgia women whose disabilities include intellectual disabilities and mental illness.

NJ Paid Family Leave - How Can We Make it Better?

NJ is one of only a few states that has paid family leave insurance for families who need to take family leave.  But it isn't being used as much as it should, and it isn't helping families as much as it could.  So how can we make it better?  The National Center for Children in Poverty (NCCP), in collaboration with Advocates for Children of New Jersey, the Statewide Parent Advocacy Network, and other advocates, released the findings and recommendations from the New Jersey Parenting Project: Protecting Workers, Nurturing Families: Building an Inclusive Family Leave Insurance Program. This is

LEND Application Pending; Boggs Center Recruiting Possible LEND Family Trainees!

The Boggs Center of Excellence on Development Disabilities, in collaboration with SPAN and other partners, has submitted an application to serve as NJ's LEND project.  They are interested in recruiting family trainees. Family trainees would participate in NJLEND alongside graduate students in Dentistry, Developmental Behavioral Pediatrics, Nursing, Nutrition, Psychology, and Social Work. If we are funded, the program would begin in September and trainees would participate in NJLEND for 300 hours over the course of the academic year, ending in May.

SPAN to Collaborate with National Family Voices in National Center for Family-Professional Partnerships

SPAN partnered with National Family Voices in a successful application to serve as the National Center for Family-Professional Partnerships for 2016-2019 (http://mchb.hrsa.gov/progr…/familypropartnerships/index.html). Funded by the US Department of Health and Human Services Maternal and Child Health Bureau (MCHB), the NCFPP is one of six national centers funded to provide technical assistance to improve outcomes for children and youth with special healthcare needs (CYSHCN). SPAN's Executive Co-Director Diana Autin will serve as Project Co-Director with Nora Wells and Bev Baker of Family

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