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National Center for Family-Professional Partnerships

SPAN is partnering with National Family Voices to co-lead the National Center for Family-Professional Partnerships for 2016-2019 (http://mchb.hrsa.gov/progr…/familypropartnerships/index.html). Funded by the US Department of Health and Human Services Maternal and Child Health Bureau (MCHB), the NCFPP is one of six national centers funded to provide technical assistance to improve outcomes for children and youth with special healthcare needs (CYSHCN). SPAN's Executive Co-Director Diana Autin is Project Co-Director with Nora Wells and Bev Baker of Family Voices.  SPAN's focus is working with the network of Family to Family Health Information Centers (http://mchb.hrsa.gov/programs/familytofamily/index.htmland Maternal and Child Health Programs across the country to enhance their capacity to develop, engage, and support diverse family and youth leaders in systems change for CYSHCN. We use materials from Serving on Groups (www.servingongroups.org) and Leading by Convening: The Partnership Way (http://www.ideapartnership.org/bui…/the-partnership-way.html) in this work.  Go to http://www.spanadvocacy.org/content/leading-convening-partnership-way to find a brief description of the Leading by Convening approach.   Other partners include the National Federation of Families for Children's Mental Health, Parent to Parent USA, Wisconsin FACETS, Youth MOVE, the Autistic Self Advocacy Network, and Kids As Self Advocates (KASA), among others.  A National Diverse Leadership Development Advisory Team componsed of diverse parent leaders from varied racial, ethnic, and language backgrounds across the country advises the work.

You can review the pre-post results for the Serving on Groups train the trainer sessions at http://www.spanadvocacy.org/content/serving-groups-train-trainer-evaluation-data, and you can review the pre-post results of the Leading by Convening full day workshops at http://www.spanadvocacy.org/content/leading-convening-training-evaluation-pre-post-survey-data.

For more information, contact Diana Autin at 973-642-8100 x 105 or diana.autin@spannj.org.

We help by:

-Providing train-the-trainer sessions on Serving on Groups and other modules to build the capacity of diverse families and youth with special healthcare needs (SHCN) to participate in systems-level improvement efforts and policy change, to Family to Family Health Information Centers, Family Voices State Affiliate Organizations, and other family leaders working to improve systems for children and youth with special healthcare needs (CYSHCN)

-Providing leadership development for national, state and local government agencies, other Maternal and Child Health Bureau investments, and family-led organizations on deeply and meaningfully engaging diverse family and youth leaders and family-led organizations using Leading by Convening: The Partnership Way (developed by the IDEA Partnership)

-Providing follow-up technical assistance to family-led organizations, state Maternal and Child Health Title V organizations, and other MCHB investments, on strategies to identify, develop, engage, and support diverse family and youth leaders in systems improvement efforts

-Connecting diverse family and youth leaders to ongoing leadership development and engagement opportunities, and to each other for continued support.

The National Center for Family-Professional Partnerships is funded by the US Department of Health and Human Services Health Resources Service Administration Maternal and Child Health Bureau.  National Family Voices is the NCFPP grantee and SPAN is a partner via subcontract.

Diana Autin
Project Co-Director
diana.autin@spannj.org
973-642-8100 x 105
Nicole Pratt
National Diverse Parent Engagement Development & TA Facilitator
npratt@spannj.org
973-642-8100
What families/professions are saying about this project: 

“The networking and learning from one another...and getting us from point A to point B in a very supportive manner has been significant for us all across the country.”  - Donene Feist

“I was lifted up and now I vow to lift others up.” - Molina Heinous

Key Resources of Interest: 

For each resource list:

Title: National Center for Family-Professional Partnerships

Description: NCFPP website

Link to specific resource in Resource section:  http://www.fv-ncfpp.org/

Title: Family-Centered Care Assessment

Description: Nationally validated tool to assess family-centered care

Link to specific resource in Resource section:  http://www.fv-ncfpp.org/activities/fcca/

Staff: 

NCFPP Co-Directors:  Diana Autin, SPAN  Bev Baker and Nora Wells, Family Voices

SPAN NCFPP Staff:  Mercedes Rosa, NCFPP National Diverse Parent Engagement Development & TA Facilitator; Ayo Bajomo, NCFPP Executive Assistant

Family Voices Diverse Leadership Development Team Staff: Jennifer Bolde Pitre, Maria Frangenberg, Trish Thomas